Cheers to the weekend. Yesterday I started to feel good off and on. :) Better than I have in days, well I guess more like weeks! This week though, when I think about it, I've managed to eat also, very small portions but more often. Way better than the previous two weeks. Still trying to watch my water intake, which is kinda of crazy, I should just ask for my blood work today I had my appointment yesterday with doctor and voiced some of my concerns and also got the all clear for chemo this morning. I'm anxious to keep moving with it, each delay, tacks onto the end. As of right now chemo will be completed mid October. Yay!
After doctor's I took Simon to the park. I managed to get him down for an early nap so he could go with me. He ran around the park and just watching him was uplifting! Hadn't felt well enough all summer to take him. We managed an hour and a half then had to come home. I still tire so easily. Hey, he got his nap in early, but that ment I missed mine! lol But over all a pretty good day. :)
Off to shower soon and mom will be picking me up for chemo. Shelly is in Atlanta on DIY blog stuff. :/ I can't think about it, or I tear up. I like her home and close! Mom and I will manage. :) Big brother Kaleb is watching Simon this morning again. <3
Have a fabulous Friday! We are! God Bless!
Friday, August 2, 2013
Thursday, August 1, 2013
Chemo delayed.
Oncology called yesterday and my doctor was off and will not be in this morning, so chemo is on hold till I can see her and get the ok for it. They had just gotten my pathology on the MRSA. They scheduled me for 1:45 today. Right at naptime. :) Once she clears me, more than likely they said I will be scheduled for Friday morning.
Wondering how long chemo drugs stay in your system after you've finished. Having last weeks put on hold I thought I'd be dancing in joy and happiness feeling good this week. lol Maybe its the MRSA. I guess I've actually only had 2 full days and one that first night of new correct drug for it. I DID read on other peoples blogs, chemo patients, that had gotten MRSA, have a difficult time with repeat infections with it, one poor lady had it 11 times! YIKES! BUT, I also read one recommendation of swabbing your nose daily with Neosporin or Bacitracin makes a HUGE difference. That is DEFINATLY on my list to ask doctor and supply up on!!! :) New goal is to get rid of this and keep it from returning. I now wipe the toilet seat with Lysol wipes every time after I use it to keep anyone else in this house from getting it. Made me think about the cancer center where I get my chemo. There are no wipes in there bathroom and no toilet seat covers. And no doctor had warned me of this possibility. I wonder how many patients in there may have it and are too embarrassed to ask the doctor about it. hmmm I believe I've been carrying this from first round of chemo almost 2 mths when I told her about it after first chemo and SHOWED her it and she gave me wrong meds. :/ I have am not one to be embarrassed to mention something if it's making me sick but others may be.
Ahh live and learn. :) Focus on keeping healthy and making certain changes. Off to start my day! I plan to make it a good one! God Bless!
Wondering how long chemo drugs stay in your system after you've finished. Having last weeks put on hold I thought I'd be dancing in joy and happiness feeling good this week. lol Maybe its the MRSA. I guess I've actually only had 2 full days and one that first night of new correct drug for it. I DID read on other peoples blogs, chemo patients, that had gotten MRSA, have a difficult time with repeat infections with it, one poor lady had it 11 times! YIKES! BUT, I also read one recommendation of swabbing your nose daily with Neosporin or Bacitracin makes a HUGE difference. That is DEFINATLY on my list to ask doctor and supply up on!!! :) New goal is to get rid of this and keep it from returning. I now wipe the toilet seat with Lysol wipes every time after I use it to keep anyone else in this house from getting it. Made me think about the cancer center where I get my chemo. There are no wipes in there bathroom and no toilet seat covers. And no doctor had warned me of this possibility. I wonder how many patients in there may have it and are too embarrassed to ask the doctor about it. hmmm I believe I've been carrying this from first round of chemo almost 2 mths when I told her about it after first chemo and SHOWED her it and she gave me wrong meds. :/ I have am not one to be embarrassed to mention something if it's making me sick but others may be.
Ahh live and learn. :) Focus on keeping healthy and making certain changes. Off to start my day! I plan to make it a good one! God Bless!
Wednesday, July 31, 2013
Wednesday!
Stay upbeat, stay upbeat....yes, talking to myself! :) Day 2 new antibiotic. I find myself really hoping some of this yucky feeling is just MRSA related and is going to disappear along with it!
Have to drink a lot of water with this new antibiotic but trying to watch my intake. My sodium runs low and the water doesn't help. I've always been big water drinker, but the problem is that it flushes out the sodium so quick. I passed out when pregnant with Simon from it, and yesterday felt sooo woozy all day, I know I have to be careful!
Focusing on keeping August plans in my mind. Lots of fun stuff to try and go to. My favorite month! lol We have our Moose club picnic Saturday. Hoping to make at least the 2nd half of it for Simon. So many good people there that are so supportive of my family. They keep me going too! I have been having some "good feeling times" throughout the day off and on yesterday and praying it continues. Other than this blog I think I do a pretty good job staying smiling. I waited a bit this a.m. to write so I am not feeling to bad right now. Legs are tingly and numb but it usually passes in an hour or two! So far so good! I want to be one of these ladies that did my same chemo that felt a little better. :) My goal!
I don't know WHAT I was thinking last night posting a public invitation to try and do a brunch this morning on my face book. lol Simon has plans and I thought it would be nice to see some girls and have a bite to eat but now I'm nervous that I won't be up to it! Good news, most busy, except one! And Kelly, would probably come visit with me here at home if I can't! Must think before post next time!
On a good note, I had a friend deliver some wood for my deck fire pit. We've always used the clean burn logs from Walmart to have a little fire on occasssion, but I wanted a chemical free fire to roast some marshmellows with Simon. He has never had one! So I am really looking forward to that! I love sitting on the deck at night with him on my swing and him telling me stories. <3 Last night we sat and he told me all the things that he could see in the clouds. Such an imagination he has! Truly my best time of the day!
Time for tea refill. I'm already water logged so I'm switching. Have a blessed day!
Have to drink a lot of water with this new antibiotic but trying to watch my intake. My sodium runs low and the water doesn't help. I've always been big water drinker, but the problem is that it flushes out the sodium so quick. I passed out when pregnant with Simon from it, and yesterday felt sooo woozy all day, I know I have to be careful!
Focusing on keeping August plans in my mind. Lots of fun stuff to try and go to. My favorite month! lol We have our Moose club picnic Saturday. Hoping to make at least the 2nd half of it for Simon. So many good people there that are so supportive of my family. They keep me going too! I have been having some "good feeling times" throughout the day off and on yesterday and praying it continues. Other than this blog I think I do a pretty good job staying smiling. I waited a bit this a.m. to write so I am not feeling to bad right now. Legs are tingly and numb but it usually passes in an hour or two! So far so good! I want to be one of these ladies that did my same chemo that felt a little better. :) My goal!
I don't know WHAT I was thinking last night posting a public invitation to try and do a brunch this morning on my face book. lol Simon has plans and I thought it would be nice to see some girls and have a bite to eat but now I'm nervous that I won't be up to it! Good news, most busy, except one! And Kelly, would probably come visit with me here at home if I can't! Must think before post next time!
On a good note, I had a friend deliver some wood for my deck fire pit. We've always used the clean burn logs from Walmart to have a little fire on occasssion, but I wanted a chemical free fire to roast some marshmellows with Simon. He has never had one! So I am really looking forward to that! I love sitting on the deck at night with him on my swing and him telling me stories. <3 Last night we sat and he told me all the things that he could see in the clouds. Such an imagination he has! Truly my best time of the day!
Time for tea refill. I'm already water logged so I'm switching. Have a blessed day!
Tuesday, July 30, 2013
Brrrr 52 on this Tuesday in PA in July!
Yes, very chilly this morning. Fall weather, waking up shivering! From mornings of 50's to afternoons in the 70's. Almost tempted to turn on little space heater at 5 am to take the extreme chill off! But, I just bundled up good and got under blankets. Need to slipper shop! lol A little early in the season, but not when its 50's!
Yesterday I felt a little better. It was an up and down day. I'd feel ok for a little while then not so good, off and on. BUT was happy to hear that I was correct in thinking I had MRSA. Not happy to have it but happy to know I wasn't crazy :). I had the same thing about a week after my very first chemo that I felt so ill and was put on an antibiotic. Then again, almost 3 weeks ago. This all could have been avoided if I'd had the right antibiotic over 2 months ago. :( So, I tossed the 2 antibiotics they gave me and started another one last night. The first 2 help a little but aren't the best choice for it I was told. This one is supposed to go in for the kill. Yay. Hopefully this one 3x a day next 10 days does the trick! This being sick junk is for the birds. I don't mind a few days of not feeling well but endless going into weeks is just too much. So here's to new med slashing the MRSA.
On another note, my UMC specialist called back. Still confused. Not going to dwell on it though. Just do my time. haha. She isn't quite sure about the lymph node comment on pathology report either. Could be nothing. Could be a little something. But she assured me it won't matter because she stated it's so close to the tumor that it will be removed along with it during surgery after chemotherapy. I'm praying it comes back clear at that time, I think it's the difference between radiation or not. Oh please pray for no radiation. I wouldn't even be doing all this chemo if it weren't for the Her2+ being 3+. Tried everything to get out of chemo. lol But was told it's the best route. Now I'm 2 mths invested so I've got to hang in there and finish. It's a challenge. I keep reading these other women doing a similar chemo plan to mine and they all feel ok. Hoping mine is linked to the 2 mths lingering MRSA and will continue to improve. Maybe? lol Please! :)
Made dinner last night. Seemed like forever that I actually cooked. But in my defense, summer is always less cooking and more grilling and such! But this crazy weather had me thinking fall foods. Needed to take the chill off the kitchen anyhow. So I made Grandma Sally's Stuffed Pepper Balls, mashed potatoes, and corn. A crowd pleaser here. I ate a little. But yikes, did I pay for it. lol Belly pains for about an hour, but it did stay put! :)
Amazingly, to this day my weekly blood work checking my white count for the need of that expensive shot that has those terrible side effects hasn't been necessary. I had that shot one time and was told I'd get it weekly. When I questioned it, and asked to have my blood checked to see if I needed it they agreed. And to this day, I haven't had to have one. hmmmmm. Politics? Government?I don't put much energy into digesting that, but I will say it does make one think! :)
So again, this morning started out rough, but already starting to feel a little better. My anti nausea with my tea is starting to kick in. YAY. Hoping for a decent day! Sometimes it's hard putting on my happy face, but for the fact of my little one with his generous affections.
Have a great Tuesday! We will here! God Bless!
Yesterday I felt a little better. It was an up and down day. I'd feel ok for a little while then not so good, off and on. BUT was happy to hear that I was correct in thinking I had MRSA. Not happy to have it but happy to know I wasn't crazy :). I had the same thing about a week after my very first chemo that I felt so ill and was put on an antibiotic. Then again, almost 3 weeks ago. This all could have been avoided if I'd had the right antibiotic over 2 months ago. :( So, I tossed the 2 antibiotics they gave me and started another one last night. The first 2 help a little but aren't the best choice for it I was told. This one is supposed to go in for the kill. Yay. Hopefully this one 3x a day next 10 days does the trick! This being sick junk is for the birds. I don't mind a few days of not feeling well but endless going into weeks is just too much. So here's to new med slashing the MRSA.
On another note, my UMC specialist called back. Still confused. Not going to dwell on it though. Just do my time. haha. She isn't quite sure about the lymph node comment on pathology report either. Could be nothing. Could be a little something. But she assured me it won't matter because she stated it's so close to the tumor that it will be removed along with it during surgery after chemotherapy. I'm praying it comes back clear at that time, I think it's the difference between radiation or not. Oh please pray for no radiation. I wouldn't even be doing all this chemo if it weren't for the Her2+ being 3+. Tried everything to get out of chemo. lol But was told it's the best route. Now I'm 2 mths invested so I've got to hang in there and finish. It's a challenge. I keep reading these other women doing a similar chemo plan to mine and they all feel ok. Hoping mine is linked to the 2 mths lingering MRSA and will continue to improve. Maybe? lol Please! :)
Made dinner last night. Seemed like forever that I actually cooked. But in my defense, summer is always less cooking and more grilling and such! But this crazy weather had me thinking fall foods. Needed to take the chill off the kitchen anyhow. So I made Grandma Sally's Stuffed Pepper Balls, mashed potatoes, and corn. A crowd pleaser here. I ate a little. But yikes, did I pay for it. lol Belly pains for about an hour, but it did stay put! :)
Amazingly, to this day my weekly blood work checking my white count for the need of that expensive shot that has those terrible side effects hasn't been necessary. I had that shot one time and was told I'd get it weekly. When I questioned it, and asked to have my blood checked to see if I needed it they agreed. And to this day, I haven't had to have one. hmmmmm. Politics? Government?I don't put much energy into digesting that, but I will say it does make one think! :)
So again, this morning started out rough, but already starting to feel a little better. My anti nausea with my tea is starting to kick in. YAY. Hoping for a decent day! Sometimes it's hard putting on my happy face, but for the fact of my little one with his generous affections.
Have a great Tuesday! We will here! God Bless!
Monday, July 29, 2013
Monday morning, really early!
It's 5:30 am and very quiet! The house is still asleep. I slept pretty good off and on from 830 or so. Took an Ambien around 10 I think. Woke up a few times, but rolled over and dozed back off. All in all not too bad. :)
I don't think I have any appts till chemo Thursday, but I'd have to check with Shelly, to be sure. Hoping to hear from my Pitts specialist soon on my ultrasound. Oncology doctor just didn't know the answers I need. :/ So I'm hoping once Dr. Bonaventura receives all of my reports and cd's that she can fill in the blanks. I was told I'd hear from her late Friday, but didn't. Wasn't to concerned though, a phone call from her then would be limited also until she has my cd which was being mailed. The reports were faxed but the films and cd mailed. So I will be patient till she gets those all together and can make her assessments. I will call my other doctor later today and see if he has pathology report back on my infection that has kept me down this pat 2 weeks. Seeing if it's MRSA or not. It is much better as far as the area, but the lingering body pains and issues are still hanging around. Wish cancer had better treatment options than chemotherapy. It truly is brutal. I've read different combos for different cancers are more tolerable, but my heart goes out to those with any like this! I will say Saturday night helped a lot, getting dressed, and doing makeup and leaving the house for awhile. My friends were able to distract me and make me feel almost normal for a little bit. I'm blessed. :)
It's almost August and it just feels like summer is slipping away! Missing my family gatherings soooo much. Seems like we aren't doing as much as we have in the previous summers. Normally we'd be together every weekend for swimming and picnics and this year is a little slacking. Maybe I will push for some more time there! I miss the little ones running around and the big boys floating and carrying on. Feels a little like they are avoiding me. Maybe I should start wearing hair around them! lol try and blend in a little more and make them think I feel better!
Today I am trying to start making myself eat something small with these morning meds. Yes, it was a small sugar cookie, barely got it down, but trying to get something in my belly before all the medication goes in. Have to figure out a way to protect my lining more. I've been having a lot of pain with the daily nausea. Maybe I should be nicer to my lining! lol Hoping it will pay off and start to improve!
Mondays are usually pretty hum drum, but today I am going to make an effort to make it a good one. For the whole household. Thawing out some hamburger to make a pot of stuffed pepper balls for them. (Their grandma Sally's recipe!) A good day for it. 50 in PA this morning, with a high of 74 at 4pm. Good day for it! Woke up feeling pretty bad, but already starting to improve. Let's have it continue throughout the day!
May everyone have a very blessed week ahead! <3
I don't think I have any appts till chemo Thursday, but I'd have to check with Shelly, to be sure. Hoping to hear from my Pitts specialist soon on my ultrasound. Oncology doctor just didn't know the answers I need. :/ So I'm hoping once Dr. Bonaventura receives all of my reports and cd's that she can fill in the blanks. I was told I'd hear from her late Friday, but didn't. Wasn't to concerned though, a phone call from her then would be limited also until she has my cd which was being mailed. The reports were faxed but the films and cd mailed. So I will be patient till she gets those all together and can make her assessments. I will call my other doctor later today and see if he has pathology report back on my infection that has kept me down this pat 2 weeks. Seeing if it's MRSA or not. It is much better as far as the area, but the lingering body pains and issues are still hanging around. Wish cancer had better treatment options than chemotherapy. It truly is brutal. I've read different combos for different cancers are more tolerable, but my heart goes out to those with any like this! I will say Saturday night helped a lot, getting dressed, and doing makeup and leaving the house for awhile. My friends were able to distract me and make me feel almost normal for a little bit. I'm blessed. :)
It's almost August and it just feels like summer is slipping away! Missing my family gatherings soooo much. Seems like we aren't doing as much as we have in the previous summers. Normally we'd be together every weekend for swimming and picnics and this year is a little slacking. Maybe I will push for some more time there! I miss the little ones running around and the big boys floating and carrying on. Feels a little like they are avoiding me. Maybe I should start wearing hair around them! lol try and blend in a little more and make them think I feel better!
Today I am trying to start making myself eat something small with these morning meds. Yes, it was a small sugar cookie, barely got it down, but trying to get something in my belly before all the medication goes in. Have to figure out a way to protect my lining more. I've been having a lot of pain with the daily nausea. Maybe I should be nicer to my lining! lol Hoping it will pay off and start to improve!
Mondays are usually pretty hum drum, but today I am going to make an effort to make it a good one. For the whole household. Thawing out some hamburger to make a pot of stuffed pepper balls for them. (Their grandma Sally's recipe!) A good day for it. 50 in PA this morning, with a high of 74 at 4pm. Good day for it! Woke up feeling pretty bad, but already starting to improve. Let's have it continue throughout the day!
May everyone have a very blessed week ahead! <3
Sunday, July 28, 2013
Sunday night.
I made it through the weekend. Still kickin ;) lol I've had my doubts the last couple weeks, but hanging in there. Friday we had some plans but were unable to even attempt them because of cancer. Disappointed wasn't the word. More like getting discouraged.
Saturday was pretty relaxing most of the day, Simon had his first bowling adventure with dad. From the pictures it looked like he really enjoyed it! I stayed home and did the bed to recliner routine pretty much most of the day. Saturday night I had scheduled the girls to watch Simon. My body and mind tried to talk myself out of it multiple times before the girls even got here! But, I didn't cave. We went. Had a nice time seeing some friends and having some adult time after almost 2 weeks at home sick. Other than doctors appts its been fairly lonely and just plain miserable being stuck not feeling well. It used to be when not feeling well at least a little deck company could distract me, but the last couple weeks its been too hard to even make it out to the deck. It amazes me how many people have gone through this sometimes multiple times and I've never really heard about the huge impact it has on your life. It consumes you. :/ Thus, forcing myself out awhile last night, helped my mental state quite a bit. And I made it almost 3 hours. That's impressive in itself. But getting towards 11, I had def had enough and needed to be home. :)
This morning Simon was all excited and ready for Sunday school. Full of energy and ready to go! Off he went! I spent the day between bed and recliner mostly but did manage to get outside for a small time to watch baby play. Still struggling with head and stomach pains, and dizzy nausea is getting old fast! Cancer has no allies. ;)
Boys are at the grocery store now, so it's a little quiet time. I think I'm going to use it to crawl back into bed again and try and ease some of the pains. Hope everyone had a good Sunday! God Bless!
Saturday was pretty relaxing most of the day, Simon had his first bowling adventure with dad. From the pictures it looked like he really enjoyed it! I stayed home and did the bed to recliner routine pretty much most of the day. Saturday night I had scheduled the girls to watch Simon. My body and mind tried to talk myself out of it multiple times before the girls even got here! But, I didn't cave. We went. Had a nice time seeing some friends and having some adult time after almost 2 weeks at home sick. Other than doctors appts its been fairly lonely and just plain miserable being stuck not feeling well. It used to be when not feeling well at least a little deck company could distract me, but the last couple weeks its been too hard to even make it out to the deck. It amazes me how many people have gone through this sometimes multiple times and I've never really heard about the huge impact it has on your life. It consumes you. :/ Thus, forcing myself out awhile last night, helped my mental state quite a bit. And I made it almost 3 hours. That's impressive in itself. But getting towards 11, I had def had enough and needed to be home. :)
This morning Simon was all excited and ready for Sunday school. Full of energy and ready to go! Off he went! I spent the day between bed and recliner mostly but did manage to get outside for a small time to watch baby play. Still struggling with head and stomach pains, and dizzy nausea is getting old fast! Cancer has no allies. ;)
Boys are at the grocery store now, so it's a little quiet time. I think I'm going to use it to crawl back into bed again and try and ease some of the pains. Hope everyone had a good Sunday! God Bless!
Friday, July 26, 2013
Rough morning.
I can honestly say if it weren't for my 3 yr old needing to be with mama each day I'd move out of my own home. Waking up sick and needing in the bathroom, waiting 45 min, then Simon's wakeup and needing stuff at 615 am while I'm still waiting for bathroom is just not a great start to the day. Going into kitchen to make a cup of tea, and seeing sticky countertops and sticky table, (my fault cuz I grilled them some dinner and didn't clean) is just another lovely bonus living with insensitive clueless men. These 2 really have NO idea what cancer and chemo is all about. I think moving in with my family and them dealing with living on their own, including paying daycare $800 a month may be an eye opener that should come soon. Hey, I may need to do what I have to do, to get through this. :) JUST SAYING.
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